Share Your Story

We want to hear from you! Please share your story with our on-line community. Let us know about the successes and struggles you experience as a person with a disability, the family member or spouse of someone with a disability or one of our many supporters. Only by sharing our stories can we learn from one another. We really want to learn about:

  • How you learned to navigate the complex maze of service systems
  • The supports and services you have been denied or gone without and how this impacts your life and the lives of your family and friends
  • Services you are receiving and how they promote your success and independence
  • Effective strategies to advocate for yourself
  • What you would like to see from your elected representatives

Thank you for taking the time to share your thoughts with us.







 

neglected medical treatment

By Deborah Cheney

I was 20 wks pregnant I went into preterm laber my husband took me to the CVMC emergency Berlin VT room the docter put me down did not call an OB took bloodwork to see if I had hemmoriods and found me very anemic used a doppler then sent me home...

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Reissued Checks

By James McConnell

Through uncontrolable circumstances my wife lsot three SSDI checks, mainly from moving from overseas. It has been almost a year since she has filed a report, then a second, then a third. Is there any legal dispute or resolution process any of you know about? Last we heard, they said September would be the very latest she would recieved the checks.

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hell

By david mathias

I am 38 years old, and I have a wife and three children, I worked very hard in factory for years, but then I became ill, and found out I had Chrones disease, I have pain and upset stomach, then surgerys, I could not work, I have no income, I have filed for ss disability, I was denied twice, but not after my last surgery, I have built up scar tissue, I am on medications that even if I could, I could not work because of the medication,I live in a small town in chester sc...

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He does not look or act disabled!

By Julie Flores

My son, age 21, was arrested Tues 3/27/07 for aggrivated robbery. While he did not perform these actions, his step brother, whom he was with, did. He is diagnosed paranoid schizophrenia and recenttly started receiving diability checks...

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stumbled upon this website by acciden

By Monika Nugent

stumbled upon this website by accident and said wow, why couldn\\\'t I have found help or this website to share my story 3 years ago. I\\\'m a mother of three my middle son has autism. Three years ago we had moved south to finacially better ourselves...

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Loop Holes

By Kami Bishop

my husband is a wonderful man. In the last year i became ill with an unknow illness. I suffer from granmal. petietemal and partial siezures. As my illness prigressed so did my siezures. We have two small children and my husband has visits with his oldest son...

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Power in you.

By Eric Matthes

As the immediate pat chair of the central region people firsr I have shown the capable leadership of helping people realize the importance of stepping up and becoming responsible for what is happenig at their meetings...

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my story

By tom brownlee

my name is tom brownlee i am a persomn with a cognitve disability. i am current ly on the waiting list for services. i stand up and fight for self advocastes right as helping them get the independence they need in there lives...

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Disability Means a Different Way of Life These Days

By Lopeti Penima'ani

My name is Lopeti and I am a 46 year old male who considers himself to be independent, although over the past decade, I have learned to accept help from others, most often reluctantly.

I grew up in Utah, and was diagnosed with disthymia (chronic clinical depression) while in elementary school, along with chronic pain (then thought to be juvenile arthritis), ulcers, and migraines, all of which landed me in the hospital on separate occasions...

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